whats so important about vitamin D and how could one get profoundly deficient in it? Evidently you can break bones without even knowing it.
I’m going to find out what I can do to help raise it. I have to get my levels up off the floor.
So two weeks ago Annie was here helping me do the things I can’t and we had went to Sams and Walmart and by the end of the night, I looked down and both my feet and ankles looked like elephants feet. They were huge and it hurt to walk on them. What had I done? I don’t think I had hit them or twisted them. I decided if it was a injury that I must have not been conscious when it happened. The right one finally went down but still makes sure to be good and swollen every night. I think I better have the right side checked but it’s two more weeks until my next appointment.
So once again to shorten this chapter of my nightmare,I’ll shorten it by saying it took 17 days, and four doctors to convince them my ankle was broke.
First I went to the Access Clinic because it was on a weekend. I went to the one on Reno and Mustang Road. They took a X-ray and told me nothing was wrong. They wrapped it up and told me to go home and put some ice on it. Second I went to see my PCP and she said it sure looked like it could be gout and she gave me a script for some prednisone. I never took it. Third I went to a foot and ankleDoctor named Rick Trazick and he looked at it and said it just looked swollen. He said, ” go get you some of those compression socks and if it’s still swollen in a month I’ll do a MRI. I started to weep a little and I said, ” I had hoped you could help me, my leg feels broke.” He ask his nurse, did he see me walk in here, did I have a cane, he acted surprised that I used valet parking. I told him it was very painful to walk on it. It was very insulting to me because his questions were expressed as though I was not being truthful. He himilliated me. I guess he thought I wanted pain pills. He said, ” want me to give you some numbing cream?” I thanked him and said no, I had been wrapping lydacaine patches on it then a ace bandage on top. Pain pills never entered my mind. I just needed help. I left his office sobbing. Worst part of it all is I was referred to him by a good friend.
I knew all I needed was a MRI so I called my PCP and told her to order me a MRI late that night because I was going to make my own appointment with a orthopedic doctor and I needed it.
I had to wait two days for my MRI to be read but it finally came in. The proof of why I had been hurting so bad had finally been revealed.
New Years Eve and it was 19 degrees today. I made my way up to the hematologist office for a blood draw. I have one more next Wednesday and I have to say I will be so glad when this is over. It’s nothing serious I don’t think. My body makes very few white blood cells and hasn’t for about 35 years. She thinks I have some kind of autoimmune disease.
I don’t want this post to be about my health although there is a lot going on. A lot of trying to figure out things. My knee joints keep coming out of their sockets if I’m not careful. I can hardly get my body up in the standing position to walk. At first We thought the Crestor has done irreversible damage to my muscles and connective tissue but who knows. I see a RA the last of February so I guess we will find out. I am so sick of feeling this way and I feel in my heart that my family is sick of me too. So without making this entry about what’s going on now, I’ll move on.
I wanted to finalize my journey through cancer but I think it’s going to be a part of my life every three months. Melanoma is sort of tricky, sneaky crazy stuff that can hide in your hair. Let me say, you have to know your own body very well because there is no way your doctor could look over every square inch. I get freaked out when I find a spot that lingers too long. That is the secret to my kind of cancer, which wasn’t pigmented. Remember? It was a pretty pink spot. So actually I might just think it’s a regular bump.
I don’t know where I left off with the surgeries. The first or second fat injection and scar revision? There won’t be a third. The last one I almost bled to death. They had to keep me under sedation two extra hours to try and stop the bleeding. He said that I had a unusually large vein that got cut and wouldn’t stop bleeding.
I came home that night stapled together like Frankenstein and I may just post some pictures so you will believe me. I think (in my opinion) there was a rush to stitch me back up so it turned out ugly. When my primary care doctor saw me for something else she said I needed to go up there stat, that it looked bad. The whole purpose of that surgery was to put the second fat injection in my eye that had a big sunken in place but also as important was to revise the scars so that I could wear my hair up and wear it in a ponytail when I wanted. I don’t even know why i keep it longer because I’d rather it be up. So I not only almost bled to death, I now had uglier scars. What? that was my purpose of spending the money. I thought Plastic Surgeons automatically made beautiful tiny scars that could hardly be seen. Well I didn’t get any pretty ones. I felt like mine all looked like a General Surgeon had sewn me up. Does the big scar on my face look good now? I know some of you will say but oh Vickie it looks so good. You know why it does? Because I spent a lot of money and went through some very painful laser resurfacing procedures. They can’t just laser your scar, they have to burn off your whole face. So yes, my big scar looks good because I paid the money and pain to get it that way.
I also came out of that surgery with two huge patches of my hair shaved off, all the way up higher than my ears. It looked like I had a Mohawk up to about my knowledge bone.The first surgery I had two tiny places shaved so why the excessive removal of my hair this time. I know why but I’m choosing at this time to keep it to my self. So needless to say I have not been able to wear my hair up or in a ponytail which is what the surgery was for in the first place.
The other day, I’m guessing six months later, the shaved hair grew out enough for me to cut the rest of my hair to meet it. My hair is pretty short but I figure it should grow pretty fast. It usually does.
so I started the vitamins April 28th. I think I started the B earlier but the D was on the 28th. It feels like I’ve been on it for eight weeks but I guess I haven’t. I’m so anxious to to see some improvements that I can taste them. To have the freedom to get down into the floor with my grandchildren or play in the sandbox without any pain would be the biggest blessing. I take playing with my grandbabies very serious. I want to be at their level.
If I could just see a tiny bit of improvement it would give me hope. I need that smidgen of hope to keep going. You just don’t know how bad. Just a tiny bit of hope to feed this hungry heart💙
It seems like a eternity since this all started but it’s only been since Jan of 2013. I thought after I beat the cancer that my life would get back to normal. That wasn’t to be. It all started about a year and a half ago that I lost most of the use of my legs. If I can get up I can walk but getting up is so painful it makes me literally cry. When others are here I try to hide it but when I’m alone I cry out. I can no longer get out of my bathtub or get in the floor to do photography. My muscle strength is gone. I told every doctor I had about it but no one had any answers or seemed to want to help me figure it out. I felt something behind my left knee and did my own research on that. There’s a thing called Bakers Cyst that can fill with fluid and right now I think mine is about to bust. It’s been diagnosed that it’s there but no one has addressed it. The pain in my knees is unbearable.
John questioned why I had the muscle issue and ask Dr Beason to take a look at me. He is a neurologist and specializes in neuromuscular diseases. To make this long nightmare short, Dr Beason first did seven viles of blood test. When he found that a was major deficient in B-12 and D he stopped and turned me back over to my primary care physician Dr Wood. I take 50,000mcg of vitamin D every week and 2500 oh B-12 every day. How long will it take to build up in my system and WILL it work?
where are you God? I thought by now you’d come down and heal me. I put on a pretend face so that no one knows how much I’m hurting. How long will it take?